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Episode 33 - 9/27/23
Show Notes
Claudia and Bev interview Dennis James Capolongo. Dennis is a retired patient advocate and former director of the EDNC in Washington DC. His 25 year career as a photojournalist came to an abrupt end after having been misdiagnosed with a disc herniation for minor hip pain in 2001. Unfortunately this led to a calamity of errors resulting in two subdural epidural steroid injections using Pfizer's DepoMedrol, an off-label, unapproved application of particulate steroid suspensions. He suffered progressive irreparable harm to his brain, spinal cord and eyes. His efforts at the FDA resulted in new warnings & revisions for all injectable steroids worldwide. Today he spends most days in bed controlling the severe adverse effects of these life-altering, unlicensed pain management procedures.
Although Dennis' org is closed, the videos are still available on his YouTube Channel
To see the full unedited video including before and after the podcast discussions -please go to The Doctor Patient Forum's Patreon Page - Patreon.com/thedoctorpatientforum
If you've had an experience with ESI that you'd like to share with us, please email bev@thedoctorpatientforum.com
Do you have a story about ESI that you'd like to share? Please email bev@thedoctorpatientforum.com
Disclaimer: The information in this podcast is not to be considered medical or legal advice
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Episode 32 - 9/13/23
Show Notes
Netflix released another nonsense series about the Sacklers called Painkiller. Cameron English, a journalist from ACSH, published an amazing article calling them out on their lies. Cameron breaks it down for us.
Cameron's links:
Twitter: @camjenglish
Podcast: Science Facts & Fallacies
If you'd like to see the video of this episode including before and after the podcast discussion, please go to our Patreon page -
patreon.com/thedoctorpatientforum
Disclaimer: The information that has been provided to you in this podcast is not to be considered legal or medical advice.
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Episode 31 - 8/29/23
Show Notes
It's hard to believe it's been an entire year since we launched our podcast. In that year, we've had over 20,000 listens! We are so grateful to everyone who listens and supports us.
This is Part 2 of a look back at every episode.
The link to our Patreon page is patreon.com/thedoctorpatientforum
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Episode 30 - 8/16/23
Show Notes
It's hard to believe it's been an entire year since we launched our podcast. In that year, we've had over 20,000 listens! We are so grateful to everyone who listens and supports us.
This is Part 1 of a look back at every episode.
The link to our Patreon page is patreon.com/thedoctorpatientforum
Disclaimer: The information in this podcast is not to be considered medical or legal advice
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- Hits: 505
Episode 29
Marissa Cors is a fierce Sickle Cell Disease advocate. She is a 5th generation SCD Warrior and her family has a non profit called Axis Advocacy.
We first heard about Marissa when one of her Tik Tok videos went viral about a SCD patient, Brittany. Brittany was horribly mistreated, and recorded her mistreatment. Brittany sadly lost her life to SCD. Marissa was her advocate. Marissa's Tik Tok channel is called Escaping Sickle Cell Hell.
The clips from Brittany's ER experience can be heard in their entirety here..
For behind the scenes discussion with Marissa, please go to The DPF Patreon page.
Disclaimer: The information in this podcast is not to be considered medical or legal advice
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Episode 28 - Bonus - 7/30/23
Dr. Carl Hart was a guest on our podcast earlier this year. Here is the link to the episode, in case you missed it.
Dr. Hart contacted us last week with some very exciting news! He asked us to help him co-edit a medical journal. This is such a huge opportunity and we are grateful we will be able to bring attention to the suffering of CPP's.
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Episode 27 - 7/25/23
Show Notes
"Dr. Joshi writes regularly on his website, Daily
Remedy (www.daily-remedy.com), a trusted source
of editorialized healthcare content for both
patients and healthcare policy experts. He has
published articles on a variety of healthcare topics
in both peer-reviewed journals and trade publications. His legal writings include amicus curiae
briefs prepared for prominent federal healthcare
cases like the Supreme Court case, Ruan v. United
States."
Dr. Joshi recently appeared on our DPF Patreon live hangout and will address questions with Claudia and Bev on monthly recorded Q&A videos.
Please head on over to DPF Patreon page to see a 45-minute after the show video recording with Dr. Jay Joshi, Claudia, and Bev.
If you have a question you'd like Dr. Joshi to address on Patreon, please join Patreon and submit the question there.
Dr. Jay Joshi's contact info:
jjoshi45@gmail.com
daily-remedy.com
640-430-8024
Disclaimer - The information provided to you in this podcast episode is not to be considered medical or legal advice.
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Episode 26 - 7/7/23
Show notes
Claudia and Bev explain the OPAL Study that just came out of Australia.
This link from our website contains all of the up-to-date information and all of the links we mention in this episode. We are planning on doing a follow-up podcast episode with Dr. Chad Kollas, from DPF Board.
Disclaimer: The information contained in this podcast is not to be considered medical or legal advice
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Episode 25 - 7/4/23
Show Notes
Claudia and Bev interview Pharmacist Matt from Tik Tok.
In case you missed our first episode with Matt, here is the link.
Claudia, Matt, and Bev address the drug shortages. Bev interviews a patient who has been affected by this and reads posts from The Doctor Patient Forum Facebook page.
Matt is a community pharmacist who works at a local independent pharmacy.
If you'd like to watch an after-the-show video discussion with Pharmacist Matt, please go to the DPF Patreon page:
patreon.com/thedoctorpatientforum
Disclaimer - The information provided to you in this podcast episode is not to be considered medical or legal advice.
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Episode 24 -6/15/23
Show Notes
Claudia and Bev interview the amazing advocate, Beth Steckler. Her husband had a disease called PRSS1, and both of their children inherited it. Her daughter had a whipple procedure when she was just in first grade. Both of her children have been horribly abused in the health care system, which isn't uncommon in these days of opioid elimination.
Listen to Beth discuss the heartbreaking abuse her children continue to endure.
Beth's Twitter account - @purplemamabear
The name of the org that Beth helped to create - National Childhood Pancreatitis Foundation
Michigan Open Pediatric post-op opioid guidelines
How to advocate for a loved on in the hospital from The Doctor Patient Forum Website
If you'd like to watch an after the show video with Beth which includes an update about her daughter, please Head on over to our DPF Patreon page. patreon.com/thedoctorpatientforum
Disclaimer: The information that has been provided to you in this podcast is not to be considered legal or medical advice.
